The Misunderstood Child

I found this poem and dedicate it to my son.

The Misunderstood Child
[A poem about children with hidden disabilities]
by Kathy Winters

I am the child that looks healthy and fine.
I was born with ten fingers and toes.
But something is different, somewhere in my mind,
And what it is, nobody knows.

I am the child that struggles in school,
Though they say that I'm perfectly smart.
They tell me I'm lazy --can learn if I try –
But I don't seem to know where to start.

I am the child that won't wear the clothes
Which hurt me or bother my feet.
I dread sudden noises, can't handle most smells,
And tastes --there are few foods I'll eat.

I am the child that can't catch the ball
And runs with an awkward gait.
I am the one chosen last on the team
And I cringe as I stand there and wait.

I am the child with whom no one will play –
The one that gets bullied and teased.
I try to fit in and I want to be liked,
But nothing I do seems to please.

I am the child that tantrums and freaks
Over things that seem petty and trite.
You'll never know how I panic inside,
When I'm lost in my anger and fright.

I am the child that fidgets and squirms
Though I'm told to sit still and be good.
Do you think that I choose to be out of control?
Don't you know that I would if I could?

I am the child with the broken heart
Though I act like I don't really care.
Perhaps there's a reason God made me this way –
Some message he sent me to share.

For I am the child that needs to be loved
And accepted and valued too.
I am the child that is misunderstood.
I am different -but look just like you.

This Made My Day!

I was just viewing the website for the Adult Day Program our son Jim attends and found this photograph:



I do not know who Jim is talking to. All I know is I'm feeling mighty proud of Jim. He is one cool dude!

This mama is doing a HAPPY DANCE!

This Is Love

Today is Mother's Day. My precious son Jim made me a card with this message inside:

M -- is for Model; you have taught me so Much.

O -- is for Open arms always hugging me.

T -- is for Taking Time to always kiss me goodnight.

H -- is for Helping me, and Holding my Hand.

E -- is for your caring Eyes.

R -- is for Raising me Right.

My wonderful husband gave me a card with this message:

With Love and Thanks to My wife

I'm a better man because of your love.

And because of your love,

I now know

that home isn't a place,

it's a person.

Yes ... THIS IS LOVE. What more could any woman ask for?

"... marginally productive"

In The Arms of His Love by Del Parson

I read the article Down syndrome a modern-day death sentence By Joseph A. Cannon (Deseret News Monday, Feb. 16, 2009) and found myself becoming quite agitated, especially after reading these statements:

"'Like many,' notes Libertarian commentator Nicholas Provenzo, 'I am troubled by the implications of . . . Sarah Palin's decision to knowingly give birth to a child disabled with Down syndrome. Given that Palin's decision is being celebrated in some quarters, it is crucial to reaffirm the morality of aborting a fetus diagnosed with Down syndrome.'

"This is necessary, Provenzo informs us, 'because a person afflicted with Down syndrome is only capable of being marginally productive.'"

What does “marginally productive” mean? What does being “productive” mean?

Was I being “productive” this morning because I made the bed? Was I being “productive” when I carved the rotisserie chicken I purchased? Was I being “productive” when I made a batch of homemade chocolate chip cookies this morning?

My son Jim is developmentally disabled. He is unable to live independently. He is unable to hold a job. He attends this program: SVS. Is my son, and his developmentally disabled peers, “only capable of being marginally productive?”

Here are a couple of definitions of “productive:”

Bringing into being; causing to exist; producing; originative; as, an age productive of great men; a spirit productive of heroic achievements.

Yielding favorable or useful results; constructive.

Joseph Cannon wrote:

"We are now quickly sliding down the slippery slope. What about people who are only 'marginally productive' after they are born or when they get old? Are their lives worth preserving? And what does 'marginally productive' mean anyway? In the literature 'marginally productive' very often edges into 'merely inconvenient.'

Will the day come when we as a civilization will euthanize anyone considered “marginally productive?” Will we become a people where it is “survival of the fittest?” Are researchers trying to develop a “master race?” Is eugenics alive and flourishing today?

What are your thoughts?

Introducing ...

our handsome son Jim. Thank you so much to a special MC angel who helped me make it possible to post this photograph.

Just Wondering

I sent an e-mail message to two of my blogging friends with an attached PDF scan of a photograph of our son Jim. I haven't heard back as to whether or not they were able to view the attachment. I would have posted the photograph here on my blog, but I cannot attach PDF scans.

I'm hoping my friends were able to view the photograph of Jim. He is such a handsome young man.